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Assessing the generalisability of a multicentre qualitative dementia research: the experience and challenges faced by the MinD project in Europe

List of Authors

  1. Jennifer N.W. Lim ,  
  2. Kristina Niedderer
    ,  
  3. Isabelle Tournier
    ,  
  4. Rosa Almeida ,  
  5. Dew Harrison ,  
  6. Vjera Holthoff-Detto
    ,  
  7. Geke Ludden
    ,  
  8. Thomas van Rompay
    ,  
  9. Mascha van der Voort ,  
  10. Aleksandra Galansinska
    ,  
  11. Tina Smith ,  
  12. Raquel L. Lasada ,  
  13. Yolanda A. Bueno
    ,  
  14. Diana Druschke
    ,  
  15. Berit Ziebuhr ,  
  16. Michele Zanasi
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Abstract

Background: Generalisation of findings is an important aspect of research and essential for evidence-based practice. While generalisation is common in quantitative research, there is a lack of generalisability in qualitative research. This paper presents the experience and challenges faced by the Designing for People with Dementia (MinD) project in meeting the requirements to strengthen the generalisation of findings on the lived experience of people living with dementia and their engagement to co-create designs to empower their everyday living.

Methods: Polit and Beck (2010)’s strategies to generalise qualitative findings were applied: (1) replication in sampling; (2) replication of studies; (3) meta-synthesis of findings; (4) reflexivity and conceptualization; (5) immersion with the data; and (6) thick description.

Results: While it is possible to increase the generabilisabilty of qualitative evidence through the replication of the sampling to attain a large, heterogeneous sample in different and multiple contexts and environments; implementation of sound and robust research; conducting in-depth analysis and interpretation collaboratively for emergent themes; and meeting the thick description requirement, there are challenges that the project team faced in implementing some of the Polit and Beck’s strategies because of the condition, namely dementia, that our participants are having. Other challenges faced were: the language and cultural diversity in the team; diverse work and organisational procedures; and the inter-disciplinary differences relating to the methods of enquiry, approaches and techniques to conduct research. These challenges will need to be identified and addressed at the start of the project with a strong leadership to ensure a seamless journey to complete the project successfully. Trust between the researchers and participants, and time to build this trust are critical to recruitment and participation in the study; these factors are of utmost important in research involving participants with condition such as dementia.

Corresponding author
Jennifer N.W. Lim
0000-0001-7696-949X
Grant information

This research was financially supported by the European Union’s Horizon 2020 research and innovation programme under the Marie Skłodowska-Curie grant agreement No 691001 (Designing for People with Dementia' [MinD]). This document reflects only the author's view and the Research Executive Agency is not responsible for any use that may be made of the information it contains. The funding body had no influence on study design; data collection and analysis, writing the article and in the decision to submit the article for publication.

The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript.

Copyright
© 2021 Jennifer N.W. Lim (Corresponding Author, Co-Author); Kristina Niedderer (Co-Author); Isabelle Tournier (Co-Author); Rosa Almeida (Co-Author); Dew Harrison (Co-Author); Vjera Holthoff-Detto (Co-Author); Geke Ludden (Co-Author); Thomas van Rompay (Co-Author); Mascha van der Voort (Co-Author); Aleksandra Galansinska (Co-Author); Tina Smith (Co-Author); Raquel L. Lasada (Co-Author); Yolanda A. Bueno (Co-Author); Diana Druschke (Co-Author); Berit Ziebuhr (Co-Author); Michele Zanasi (Co-Author) Creative Commons License

This work is licensed under a Creative Commons Attribution 4.0 International License.

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Authors & roles

Jennifer N.W. Lim

Faculty of Education, Health and Wellbeing, University of Wolverhampton, Wolverhampton, WV1 1LY, UK

Roles
Corresponding Author, Co-Author, Conceptualization, Formal Analysis, Investigation, Methodology, Writing – Original Draft Preparation, Writing – Review & Editing
0000-0001-7696-949X

Kristina Niedderer

Manchester School of Art, Manchester Metropolitan University, Manchester, UK

Roles
Co-Author, Conceptualization, Formal Analysis, Funding Acquisition, Project Administration, Writing – Original Draft Preparation

Isabelle Tournier

Manchester School of Art, Manchester Metropolitan University, Manchester, UK

Roles
Co-Author, Writing – Original Draft Preparation, Writing – Review & Editing

Rosa Almeida

INTRAS, Valladolid, Spain

Roles
Co-Author, Writing – Review & Editing
0000-0003-3721-7214

Dew Harrison

Faculty of Arts, Business and Social Sciences, University of Wolverhampton, Wolverhampton, UK

Roles
Co-Author, Writing – Review & Editing
0000-0003-4002-0113

Vjera Holthoff-Detto

Alexianer Krankenhaus Hedwigshoehe, St. Hedwig Kliniken, Berlin, Germany

University Hospital Carl Gustav Carus and Carl Gustav Carus Faculty of Medicine, Technical University of Dresden, Dresden, Germany

Roles
Co-Author, Writing – Original Draft Preparation, Writing – Review & Editing

Geke Ludden

Department of Design, Production and Management & Department of Communication Science, University of Twente, Enschede, The Netherlands

Roles
Co-Author, Writing – Original Draft Preparation, Writing – Review & Editing

Thomas van Rompay

Department of Design, Production and Management & Department of Communication Science, University of Twente, Enschede, The Netherlands

Roles
Co-Author, Writing – Review & Editing

Mascha van der Voort

Department of Design, Production and Management & Department of Communication Science, University of Twente, Enschede, The Netherlands

Roles
Co-Author, Writing – Review & Editing
0000-0002-4800-7557

Aleksandra Galansinska

Faculty of Arts, Business and Social Sciences, University of Wolverhampton, Wolverhampton, UK

Roles
Co-Author, Writing – Review & Editing

Tina Smith

Faculty of Education, Health and Wellbeing, University of Wolverhampton, Wolverhampton, WV1 1LY, UK

Roles
Co-Author, Investigation, Writing – Review & Editing
0000-0002-8517-9921

Raquel L. Lasada

INTRAS, Valladolid, Spain

Roles
Co-Author, Writing – Original Draft Preparation
0000-0002-1697-7655

Yolanda A. Bueno

INTRAS, Valladolid, Spain

Roles
Co-Author, Writing – Original Draft Preparation

Diana Druschke

University Hospital Carl Gustav Carus and Carl Gustav Carus Faculty of Medicine, Technical University of Dresden, Dresden, Germany

Roles
Co-Author, Investigation

Berit Ziebuhr

Alexianer Krankenhaus Hedwigshoehe, St. Hedwig Kliniken, Berlin, Germany

Roles
Co-Author, Investigation
0000-0002-8563-1797

Michele Zanasi

Alexianer Krankenhaus Hedwigshoehe, St. Hedwig Kliniken, Berlin, Germany

Roles
Co-Author, Investigation

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